Low Incidence Disease Specialist for Department of Education

At last!! the Minnesota State Dept of Education finally hired a Low Incidence Specialist, who is the director of all the programs that affect our kids with chronic health problems. She was just hired in late January. Sickle Cell Disease is apparently is at the top of her list! She is setting up a small

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Sickle Cell Treatments

Although research and sickle cell treatments have progressed in the last several decades, there are still many unfortunate challenges sickle cell patients face today. (See article on sickle cell challenges) ~Ijeoma Okechukwu~

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Sickle Cell Challenges in Nigeria

The unfortunate battle amongst sickle cell patients, drug companies and the government is continously unfolding in countries like Nigeria. There is an urgent demand for the unavailable sickle cell drug, Nicosan (See article on Nicosan battle). ~Ijeoma Okechukwu~

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Sickle Cell Legislation

Sickle Cell Disease is a prevalent disorder in the United States; approximately 72,000 individuals in American are affected by this illness. Unfortunately, there are many issues surrounding this disease. Issues inclusive of discrimination, health insurance coverage and sickle cell research. Visit The National Conference of State Legislatures website to learn more about the statutes and

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What is Hydroxyurea?

Hydroxyurea (HU) is an anti-neoplastic agent that stimulates increased synthesis of fetal hemoglobin (Hb-F). Hydroxyurea is the generic drug name for this medication. Droxia ™ and Hydrea™ are common brand names of hydroxyurea. It was originally available in a pink and purple oval capsule form for adults but now it is available in a white

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First Annual Minnesota Sick Cell Disease Conference

FIRST ANNUAL MINNESOTA SICKLE CELL DISEASE CONFERENCE September 15, 2007 BREAKING THE SICKLE CYCLE: DO YOU HAVE WHAT IT TAKES? In Minnesota, an estimated 500-600 people live with sickle cell disease and an additional 15-20 babies are born with sickle cell disease each year. There are currently no community-based initiatives that focus on providing education,

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